Instillation Notes and Side Effects for each treatment
|First BCG treatment of this series: |
Things were different this time, and not as easy as I’d hoped. First off was the instillation process. These had become routine and only briefly unpleasant. This time we had a different nurse that I’d never met before do the setup, and Dr. Hopkins came in 20 minutes late, and appeared slightly distracted. After the usual pleasantries, he proceeded. “Here’s the xylocaine,” he said. I was surprised, as we’d always foregone that before. He squeezed it right from the tube into the tip of my penis. It’ didn’t hurt or burn, but it did feel a bit weird and goopy. Then he inserted the small catheter. There was a lot less stress around the prostate and in the bladder, and the instillation was, I’d say, a net reduction in stress, but a slight increase in mess. Another thing that was different was the amount of air that went in. I think this was because the doc was a bit rushed, and squeezed the solution in rather than just pure gravity feed. But I don’t know. I had three “penis farts” when finally clearing the bladder – at 3 different times, and the second one was quite big and vocal. Didn’t hurt or anything, but not nearly as funny as is sounds to me as I describe it here. The last big difference was the presence of tissue being expelled in addition to the bright blood clots. There were a few specks before, but nothing significant. This time quite a lot of “bits” came out. No pain or anything, but new and disconcerting. I know this is not abnormal, as David F. in England described them, and now I know what he meant.
Second BCG treatment of this series:
Instillation was routine. I asked the doctor if the Xylocaine was his new protocol or optional. He said that some patientsprefer it, but it was up to me. I suggested that the creepiness of it outweighed any benefit. He said the data showed no statistical difference in discomfort, and was happy to proceed without it. I felt the tube more, but no real discomfort, and was able to mostly keep up my end of the conversation during instillation. He was in less of a hurry and allowed it to gravity feed, so no weird penis farts this time. That was nice.
Third and last BCG treatment of this series:
Instillation was uneventful. I asked the doc about a follow up CT scan, so we discussed that and looked at the upcoming schedule for scoping and BCG as well. He was pleased and surprised that the 2nd one last week was milder than the first two weeks ago. He sent us on our way with hopes that the third would be more like the second than the first. NOTE: The doc said I could take up to 4 ibuprofen pills (200mg each) preemptively a soon as I got home. I have chosen not to do this. If something feels bad, I prefer to know how bad first. When the cramping comes, I delay as long as I can to see if it gets worse, and to provide data for you folks… The raw data on these instillation pages can be somewhat hard to digest, so I looked last time and this time for some key info. I think you will find the differences interesting:
Series 1 – First BCG – Full strength: symptoms started at 3.75 hours and peaked at 6 hours Peak was 8 out of 10 on my misery index
Series 1 – Second BCG – 1/2 strength: symptoms started at 3 hours and peaked at 7 hours Peak was 9 out of 10 on misery index
Series 1 – Third BCG – 1/3 strength: symptoms started at 3 hours and peaked at 4 hours Peak was only 1 out of 10 on my misery index
Series 2 – First BCG – 1/3 strength: symptoms started at 3.25 hours and peaked at 6 hours Peak was 4 out of 10 on misery index
Series 2 – Second BCG – 1/3 strength: symptoms started at 3.5 hours and peaked at 4 hours Peak was 1.5 out of 10 on misery index
Series 2 – Third BCG – 1/3 strength: symptoms started at 3.25 hours and peaked at 4.25 hours